The Cancer Color of October is … (2015 Version)

NOTE: This is an update of a post I originally wrote in October 2014.

The Cancer Color of October is … not always PINK.

SONY DSC

It is October, and pink predominates pretty much everything because October is Breast Cancer Awareness Month. Breast Cancer Awareness Month is important to me because I am the daughter of a survivor and have seen countless friends, acquaintances, and fellow humans (women and men) be diagnosed with this disease. Some are (blessedly) still alive and thriving; others have passed away. As a woman, I face a 1:8 chance of being diagnosed with breast cancer at some point in my life. Therefore, for selfish reasons research should be supported. However not all “pink” is effective “pink,” and there are many other causes out there of which we need to be aware and for which we need to take action.

When Pink Makes Me See Red

I am wearing a lot of pink this month, and having been a multiple-year captain at Making Strides Against Breast Cancer, I am in full support of many efforts to raise awareness of breast cancer and fundraise toward support and research. Here in Tallahassee, October 2015 is fully in pink bloom, with many of our city’s leaders and brightest lights leading the way. However, it is important to know that not every product robed in pink does much good and to make well-educated purchasing decisions.

When Pink Has Gray Areas

It is also important to respect the connotations all that pink carries for people currently dealing with breast cancer, either for themselves or a relative. Sarah Thebarge writes eloquently of the evolution of her feelings about pink as a color representing breast cancer here.  She also wrote a superbly useful list of 31 Ways to Help a Friend Who Has Breast Cancer (visit it here) which goes beyond wearing pink.

But Paula You Said This Post Wasn’t Just About Breast Cancer!

It’s not. I want to encourage you to add some “blue” to your October observances (I know, now it’s feeling baby shower-ish up in here, isn’t it?). Prostate cancer is the second leading cause of cancer deaths in the US. It has affected many men I know.

Ed Randall’s Fans for the Cure seeks to “save lives by increasing awareness of prostate cancer and the life-saving value of early detection while providing education and information about cutting-edge research to reduce risk, detect, and treat prostate cancer.”

Fans for the Cure aims to encourage all men over 40 to consult with their doctors and schedule their prostate exams and PSA blood tests today because early detection saves lives.

See Tom Foley, Tampa Bay Rays Bench Coach, discuss prostate cancer and his father’s experience here:

Fans for the Cure envisions a world where all men are aware of their risk and know how to prevent prostate cancer. (Early detection can involve a simple blood test. Read more about detection options here or visit this site to donate.)

Fans for the Cure was present at nearly 175 minor-league games this baseball season. At these games, Fans for the Cure partners with local hospitals to offer prostate cancer screening and provides information. I hope to make one of these games next year.

Got it: PINK, BLUE, and … GRAY?

I had this “pink and blue” post planned for weeks before I wrote the original post in 2014. One individual’s story presented itself to me via friends, though, and it was important to add it. Andy Nichols was the brother-in-law of a friend (as she puts it “the brother of my heart.”). Andy had an aggressive glioblastoma brain tumor, which is in the same family of brain tumors as the one my friend Dustin had. When I learned that Poplar Head Baptist Church would be holding a 5K race in Blountstown on October 11, 2014, in Andy’s honor (to help with expenses not covered by insurance as well as raise awareness), and that his friends wanted help getting the word out and generating as much participation as possible, I knew in a heartbeat that I would be heading west that day.

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Tiffany, Debbie, Paula O’Neill and I had such a fun day at the fun for Andy!

Andy and his family chose the "I have hope" phrase to symbolize hope for a cure for ALL forms of cancer, not only brain cancer.

Andy and his family chose the “I have hope” phrase to symbolize hope for a cure for ALL forms of cancer, not only brain cancer.

NOTE: Andy passed away from complications caused by his brain cancer. He is not forgotten, even by those who did not technically know him.

So Many Causes … Where Do I Go From Here?

I wish I knew! I have only scratched the surface, with a bias toward the fact that it’s October, that my mom (pictured in this post with a pink bird of hope) is a breast cancer survivor, that Ed Randall is doing so much across the country to encourage men to get screened for prostate cancer, and that Andy and his family needed (and got) our support on October 11. My friend Mary Jane, a multiple myeloma survivor, organized a team for the NYC Half Marathon in March via Team in Training and our team ROCKED THAT RACE. As to “where do I go from here?”

cancer colors

This graphic is from www.crochetforcancer.org.

In a sea of choices, the best recommendation I can make is the same one I would make if you were drowning in a literal sea: clear your head, get your bearings, look for the surface, orient yourself toward the shore, and take action. Your action may be donating funds, running in a race, running for a cause (hello, Charity Miles and Stand Up 2 Cancer!), or simply telling someone who has cancer “I am here for you” or asking their family what you can do to help.

Whatever you choose, don’t for a minute let yourself believe that your contribution is too small or won’t matter.

My mom, Ed Randall, Andy, and Mary Jane would surely feel differently …

The Cancer Color of October Is …

The Cancer Color of October is … not always PINK.

SONY DSC

It is October, and pink predominates pretty much everything because October is Breast Cancer Awareness Month. Breast Cancer Awareness Month is important to me because I am the daughter of a survivor and have seen countless friends, acquaintances, and fellow humans (women and men) be diagnosed with this disease. Some are (blessedly) still alive and thriving; others have passed away. As a woman, I face a 1:8 chance of being diagnosed with breast cancer at some point in my life. Therefore, for selfish reasons research should be supported. However not all “pink” is effective “pink,” and there are many other causes out there of which we need to be aware and for which we need to take action.

When Pink Makes Me See Red

I am wearing a lot of pink this month, and having been a multiple-year captain at Making Strides Against Breast Cancer, I am in full support of many efforts to raise awareness of breast cancer and fundraise toward support and research. Here in Tallahassee, October 2014 is fully in pink bloom, with many of our city’s leaders and brightest lights leading the way. However, it is important to know that not every product robed in pink does much good and to make well-educated purchasing decisions.

When Pink Has Gray Areas

It is also important to respect the connotations all that pink carries for people currently dealing with breast cancer, either for themselves or a relative. Sarah Thebarge writes eloquently of the evolution of her feelings about pink as a color representing breast cancer here.  She also wrote a superbly useful list of 31 Ways to Help a Friend Who Has Breast Cancer (visit it here) which goes beyond wearing pink.

But Paula You Said This Post Wasn’t Just About Breast Cancer!

It’s not. I want to encourage you to add some “blue” to your October observances (I know, now it’s feeling baby shower-ish up in here, isn’t it?). My friend and former coach, Jeff Kline, has stage 4 prostate cancer.

jeff running

Jeff Kline of PRS Fit

Jeff has devoted October to running across the United States with a goal of motivating men to get screened (his point is that if he had done a simple screening a few years ago, his cancer would have been caught at a time when treatment would have been simpler and the prognosis would have been much more hopeful). One of Jeff’s initial blogs about his diagnosis and decision to run cross country is here. Jeff and a team of supporters are running the Marine Corps Marathon on October 26, 2014, to raise funds for ZERO (an organization dedicated to ending prostate cancer).

M2EPC

In support, I will be participating in a virtual half marathon on Saturday, October 25, 2014. It occurred to me one day that the drive from my house to my favorite traffic light, The Optimism Light, is roughly half of a half marathon, so my route will either begin or end at the O.L. to symbolize optimism that men will commit to getting themselves screened so they can be around for their families and friends for a long, long time. (Early detection can involve a simple blood test. Read more about detection options here or visit this site to donate.)

Got it: PINK, BLUE, and … GRAY?

I have had this “pink and blue” post planned for weeks. One individual’s story presented itself to me via friends, though, and it is important (and time sensitive) to add it here. Andy Nichols is the brother-in-law of a friend (as she puts it “the brother of my heart.”). Andy has an aggressive glioblastoma brain tumor, which is in the same family of brain tumors as the one my friend Dustin had. When I learned that Poplar Head Baptist Church is holding a 5K race in Blountstown on October 11 in Andy’s honor (to help with expenses not covered by insurance as well as raise awareness), and that his friends wanted help getting the word out and generating as much participation as possible, I knew in a heartbeat that I would be heading west that day. If you are here in North Florida, please consider coming over to Blountstown and participating in the race. You can register via this link.

Andy and his family chose the "I have hope" phrase to symbolize hope for a cure for ALL forms of cancer, not only brain cancer.

Andy and his family chose the “I have hope” phrase to symbolize hope for a cure for ALL forms of cancer, not only brain cancer.

If you are not able to participate in the 5K or mile Fun Run, but would like to show your support by purchasing a t-shirt, sponsoring the event, or making a donation, you can contact Tiffany Nichols at run4andy@gmail.com or Clint White at 850-643-8584.

So Many Causes … Where Do I Go From Here?

I wish I knew! I have only scratched the surface, with a bias toward the fact that it’s October, that my mom (pictured in this post with a pink bird of hope) is a breast cancer survivor, that Jeff is running across the country to encourage men to get screened for prostate cancer, and that Andy and his family need our support on October 11. My friend Mary Jane, a multiple myeloma survivor, is organizing a team for the NYC Half Marathon in March via Team in Training so you’ll be hearing about that, for sure. As to “where do I go from here?”

cancer colors

This graphic is from www.crochetforcancer.org.

In a sea of choices, the best recommendation I can make is the same one I would make if you were drowning in a literal sea: clear your head, get your bearings, look for the surface, orient yourself toward the shore, and take action. Your action may be donating funds, running in a race, running for a cause (hello, Charity Miles and Stand Up 2 Cancer!), or simply telling someone who has cancer “I am here for you” or asking their family what you can do to help.

Whatever you choose, don’t for a minute let yourself believe that your contribution is too small or won’t matter.

My mom, Jeff, and Andy would surely feel differently …

Tutus, BS, and Crisis Management (A Book Review)

monika tutu

Monika Allen (right) and her friend run as superheroes.

My social media stream was flooded Thursday (3/27/14) with the story of how Self Magazine offended a runner (Monika Allen) by putting a picture of her, running in a tutu, in its “BS” section which ridiculed the growing number of tutu wearers in races. Self had secured her permission to use the picture, but had not explained that the picture was being used in a piece that derided her choice. The final straw on the back of this ill-fated situation was the fact that the runner (who creates tutus as her business, Glam Runner) was wearing it as part of a Wonder Woman costume to demonstrate an intent to vanquish her brain cancer.

Having recently reviewed Spin Sucks: Communication and Reputation in the Digital Age as a “Spin Sucks Ambassador,” (my review available here) I thought I would see what principles I learned in the book that could have made a difference in this Self Magazine situation.

To skip ahead to the “punch line,” Self wouldn’t be in this position had there not been a lack of understanding of the magazine’s mission among the staff who prepared the “BS” piece or perhaps Self simply didn’t have a clear mission at all. As Gini Dietrich writes when discussing the ways in which communication has changed:

“In the good ol’ days … every person inside your organization was trained to say the exact same thing when talking to anyone about what you do. Your customers believed what you had to say about your product or service because you were the only one telling your story. Now all it takes is for one person to have a bad experience doing business with you, and you’re finished. No amount of PR messaging can counteract that one person’s negative experience.”

It’s good that a staff member contacted Monika for permission to use her picture but what about the internal climate, mission, and vision at Self led anyone to believe that a runner would willingly let her picture be taken to make fun of runners who love running (in tutus, in fishnets, in military fatigues, in whatever the heck they want to run in?).

In the case of the Self/Tutu issue, it wasn’t just one person having a bad experience. It was one person with a legion of fellow runners racing rapidly and vocally to her defense. What could Self do?

In the chapter on Crisis Communications, Spin Sucks details tips for managing a crisis. Gini Dietrich writes, “When the media finds out about your issue and they tell your story, you almost always end up with a crisis.”

Act Swiftly I saw the story early in the morning of March 27. I did see an apology the afternoon of March 27 (maybe six hours later?). Although six hours is better than six days, the preponderance of coverage I was still seeing 24 hours later was the accusation, not the apology.

Address The Problem The first “clarification” I saw regarding the tutu crisis stated, “we didn’t know Monika was doing this for her health” (the original text ridiculed runners who “think tutus will make them run faster”). Ultimately, the editor’s apology was longer, clearer, and announced that Self Magazine was making a donation to Monika’s charity. The editor’s announcement itself was, I thought, well crafted.

Back Down When You’re Wrong Self was wrong with the choice to publish this picture, in this way, in this magazine. They did eventually concur that they were wrong. Time will tell whether or not their readership embraces that.

In Spin Sucks, Gini Dietrich writes, “Customers are now in control. They control how they interact with your brand, what they tell their friends and families about your brand, and even how they give you information about their experience with your brand. Sometimes it’s annoying , and other times it’s pretty enlightening.”

In the case of Self, a legion of worked-up runners rose up almost immediately to control the message: Ridicule a runner for her choice of costume, especially when she is doing it in support of the disease she is fighting (and when she is donating her profits to a good cause) and lose subscribers. Were there annoyed Self Magazine staff when the pushback started occurring (and the “tutu” issue was uniformly plastered all over their Facebook page)? Probably. That annoyance was a warning flag. Is Self now enlightened enough to avoid a similar situation in the future?

Time will tell. Self hasn’t cleared all the hurdles in this race yet.

Have you ever been responsible for responding to a communications crisis? What would you have advised the Self management?

4.1.1

Spin Sucks is available at Amazon (via this link) among other book retailers. If you buy the book by April 5, send Gini Dietrich your receipt (gdietrich (at) armentdietrich (dot) com) and you’ll receive free content such as eBooks and webinars)!

There’s also a great giveaway going on until April 5!! Click this link for the opportunity to win fab prizes including a 1 hour consultation with Gini Dietrich, a free webinar, and other Spin Sucks swag!

The proud author with her creation!

The proud author with her creation!

Note: I received advance galleys of this book for review purposes. The opinion here is all my own!